Qualitative findings: main analytic themes and quotes
| Themes . | Quotes . |
|---|---|
| Disease and treatment benefits and burden | I hope it’s positive because I want to do the [LWMH] … you know, 'cause I’m scared to have a miscarriage.71 |
| …operation, colostomy, chemotherapy, and radio (LMWH) is a walk in the park compared with what I've been through76 | |
| Because I do it as soon as I get up and then if I’ve got to go anywhere it’s all done. Done and dusted.54 | |
| I can't beat the tumor but I can fight its effects…the heparin helps me face the future. I choose to inject myself because I feel I can face the future on my own terms…the DVT was terrible, I couldn't face the day.75 | |
| The timing is very pressuring, he told me that an hour [before or after] it doesn’t make a difference, but it is a big pressure for me to remember every single day at the same time…and what happens if I forget 1 day…the pressure that I shouldn’t forget, this is the most hard thing.71 | |
| And every time I had them [panic attacks], I kept thinking it was a PE so I was having a panic attack. All the time! Every day! I was…it was just ridiculous. And I just felt like it was a big dark cloud [starts to cry].68 | |
| Healthcare provider communication and relationship | I took them because my doctor advised it. And I had a lot of confidence in him based on my primary care physician, her very high recommendation.74 |
| It’s sort of reassuring knowing that people are still doing something for me. People keep talking to me about controlling my symptoms. It seems just as important to me to prevent anything that may cause bad symptoms.76 | |
| I’m sure they were giving me something, they were giving me various pills, but again, they didn’t necessarily tell me, as I recall, what it was for.66 | |
| I’ve got the option to ring if I need to speak to somebody. If you were to remove that option, then I think…although I don’t think about it on a day-today basis, I think…a piece of me would be quite worried.70 | |
| Awareness and perception of risk | Well, if it keeps me alive it’s as simple as that. I’d take poison to stay alive. It’s not nice, you’re tired every morning, pants down and injection but there you go – that’s life, isn’t it, and as I say, it’s keeping me alive, so that’s the important bit.78 |
| Not having a stroke or a heart attack or a PE! Or having a clot so big that it blocks your leg. Then you have to have it taken care of.74 | |
| I know generally if I’m high because my gums might start bleeding a bit, so I’ll probably have a test then. All the little tell-tale.70 | |
| I do know that they can make you bleed too much. That’s one of the biggest. Sometimes you don’t know because it can be internal you know and you can bleed into your gut.74 | |
| Day-to-day routine | I do ‘em, you know, it’s to suit me. So, I do ‘em in the morning. And the day’s my own then like, do you know what I mean?54 |
| I usually take them between 8 and half past 8. And then I know it’s done, and I don’t forget for the day, then, because someone I was talking to, he was saying “You don’t do it in the night, do you?” and I said, “No, I get up, have my cup of tea then 8, half past 8 do it.”78 |
| Themes . | Quotes . |
|---|---|
| Disease and treatment benefits and burden | I hope it’s positive because I want to do the [LWMH] … you know, 'cause I’m scared to have a miscarriage.71 |
| …operation, colostomy, chemotherapy, and radio (LMWH) is a walk in the park compared with what I've been through76 | |
| Because I do it as soon as I get up and then if I’ve got to go anywhere it’s all done. Done and dusted.54 | |
| I can't beat the tumor but I can fight its effects…the heparin helps me face the future. I choose to inject myself because I feel I can face the future on my own terms…the DVT was terrible, I couldn't face the day.75 | |
| The timing is very pressuring, he told me that an hour [before or after] it doesn’t make a difference, but it is a big pressure for me to remember every single day at the same time…and what happens if I forget 1 day…the pressure that I shouldn’t forget, this is the most hard thing.71 | |
| And every time I had them [panic attacks], I kept thinking it was a PE so I was having a panic attack. All the time! Every day! I was…it was just ridiculous. And I just felt like it was a big dark cloud [starts to cry].68 | |
| Healthcare provider communication and relationship | I took them because my doctor advised it. And I had a lot of confidence in him based on my primary care physician, her very high recommendation.74 |
| It’s sort of reassuring knowing that people are still doing something for me. People keep talking to me about controlling my symptoms. It seems just as important to me to prevent anything that may cause bad symptoms.76 | |
| I’m sure they were giving me something, they were giving me various pills, but again, they didn’t necessarily tell me, as I recall, what it was for.66 | |
| I’ve got the option to ring if I need to speak to somebody. If you were to remove that option, then I think…although I don’t think about it on a day-today basis, I think…a piece of me would be quite worried.70 | |
| Awareness and perception of risk | Well, if it keeps me alive it’s as simple as that. I’d take poison to stay alive. It’s not nice, you’re tired every morning, pants down and injection but there you go – that’s life, isn’t it, and as I say, it’s keeping me alive, so that’s the important bit.78 |
| Not having a stroke or a heart attack or a PE! Or having a clot so big that it blocks your leg. Then you have to have it taken care of.74 | |
| I know generally if I’m high because my gums might start bleeding a bit, so I’ll probably have a test then. All the little tell-tale.70 | |
| I do know that they can make you bleed too much. That’s one of the biggest. Sometimes you don’t know because it can be internal you know and you can bleed into your gut.74 | |
| Day-to-day routine | I do ‘em, you know, it’s to suit me. So, I do ‘em in the morning. And the day’s my own then like, do you know what I mean?54 |
| I usually take them between 8 and half past 8. And then I know it’s done, and I don’t forget for the day, then, because someone I was talking to, he was saying “You don’t do it in the night, do you?” and I said, “No, I get up, have my cup of tea then 8, half past 8 do it.”78 |