Table 3.

Outcome of treatment presented for patients with severe hemophilia and moderate hemophilia




1972

1978

1985

1992

2001
Severe hemophilia, N  159   245   384   387   420  
    Hemorrhages, median no. per year (range)*      
        Children, 0-16 y   20 (0-98)   20 (0-70)   10 (0-65)   10 (0-98)   5 (0-51)  
        Adolescents, 17-25 y   20 (0-98)   17 (0-100)   10 (0-90)   10 (0-98)   6 (0-75)  
        Adult, older than 25 y   14 (0-97)   15 (0-100)   10 (0-90)   10 (0-82)   7 (0-75)  
    Hospital admissions*      
        Hemophilia, %   51   38   25   22   22  
        Dutch males, %   —   —   6   6   5  
        Duration of stay, median no. of d/patient (range)   28 (2-252)   20 (1-180)   11 (1-100)   5 (0-330)   7 (0-89)  
    Absenteeism due to hemophilia, d (range)*      
        School  30 (0-80)   15 (0-80)   4 (0-80)   2,5 (0-80)   7 (0-90)  
        Work  15 (0-80)   20 (0-213)   7 (0-319)   8 (0-330)   5 (0-365)  
Moderate hemophilia  23   106   175   173   176  
    Hemorrhages, median no. per year (range)*      
        Children, 0-16 y   4 (0-40)   10 (0-104)   3 (0-66)   7 (33)   2 (0-57)  
        Adult, older than 25 y   4 (0-50)   5 (0-100)   2 (0-40)   3 (0-52)   1 (0-71)  
    Hospital admissions*      
        Admitted, %   51   27   23   22   15  
        Duration of stay, median no. of d/patient (range)   17 (2-180)   10 (1-50)   7 (1-50)   5 (0-72)   6 (0-31)  
    Absenteeism due to hemophilia, d (range)*      
        School  30 (0-80)   5 (0-80)   3 (0-50)   0 (0-15)   5 (0-20)  
        Work
 
2 (0-80)
 
13 (0-130)
 
7 (0-319)
 
5 (0-365)
 
3 (0-120)
 



1972

1978

1985

1992

2001
Severe hemophilia, N  159   245   384   387   420  
    Hemorrhages, median no. per year (range)*      
        Children, 0-16 y   20 (0-98)   20 (0-70)   10 (0-65)   10 (0-98)   5 (0-51)  
        Adolescents, 17-25 y   20 (0-98)   17 (0-100)   10 (0-90)   10 (0-98)   6 (0-75)  
        Adult, older than 25 y   14 (0-97)   15 (0-100)   10 (0-90)   10 (0-82)   7 (0-75)  
    Hospital admissions*      
        Hemophilia, %   51   38   25   22   22  
        Dutch males, %   —   —   6   6   5  
        Duration of stay, median no. of d/patient (range)   28 (2-252)   20 (1-180)   11 (1-100)   5 (0-330)   7 (0-89)  
    Absenteeism due to hemophilia, d (range)*      
        School  30 (0-80)   15 (0-80)   4 (0-80)   2,5 (0-80)   7 (0-90)  
        Work  15 (0-80)   20 (0-213)   7 (0-319)   8 (0-330)   5 (0-365)  
Moderate hemophilia  23   106   175   173   176  
    Hemorrhages, median no. per year (range)*      
        Children, 0-16 y   4 (0-40)   10 (0-104)   3 (0-66)   7 (33)   2 (0-57)  
        Adult, older than 25 y   4 (0-50)   5 (0-100)   2 (0-40)   3 (0-52)   1 (0-71)  
    Hospital admissions*      
        Admitted, %   51   27   23   22   15  
        Duration of stay, median no. of d/patient (range)   17 (2-180)   10 (1-50)   7 (1-50)   5 (0-72)   6 (0-31)  
    Absenteeism due to hemophilia, d (range)*      
        School  30 (0-80)   5 (0-80)   3 (0-50)   0 (0-15)   5 (0-20)  
        Work
 
2 (0-80)
 
13 (0-130)
 
7 (0-319)
 
5 (0-365)
 
3 (0-120)
 

N indicates the entire population under study.

*

Reported for the year previous to the questionnaire.

Due to hemophilia in patients following full-time day education.

Total absence in employed people between 15 and 64 years of age.

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