Sociodemographic and clinical characteristics of 109 patients transplanted for thalassemia
| Median age at survey (range) | 34 (21-48) | Median age at HSCT (range) | 12 (1-36) |
| Gender, n (%) | Pesaro class of risk at the time of HSCT, n (%) | ||
| Male | 65 (59.7) | 1 | 26 (23.9) |
| Female | 44 (40.3) | 2 | 45 (41.3) |
| 3 | 38 (34.5) | ||
| Schooling after transplantation, n (%) | |||
| Resumed | 28 (25.7) | Follow up, median years after HSCT (range) | 22.8 (11.7-30.3) |
| Completed | 58 (48.7) | ||
| Given up | 23 (25.6) | Acute GvHD (I-IV), n (%) | 39 (35.8) |
| Grade I-II | 35 (89.7) | ||
| Education level, n (%) | Grade III-IV | 4 (10.3) | |
| Compulsory school | 28 (25.7) | ||
| High school | 61 (56) | Chronic GvHD, n (%) | 20 (18.3) |
| University degree or higher | 20 (18.3) | Limited | 13 (65) |
| Extensive | 7 (35) | ||
| Employment status, n (%) | |||
| Unemployed | 19 (17.4) | Comorbidity, n (%) | |
| Employed | 84 (77.1) | Total | 81 (74.3) |
| Inactive* | 6 (5.5) | Metabolic or endocrine | 34 (42.0) |
| Hepatic | 32 (39.5) | ||
| Type of work, n (%) | Cardiac | 27 (33.3) | |
| Full-time employment | 30 (27.6) | Gastrointestinal | 6 (7.4) |
| Part-time employment | 9 (8.3) | Neurologic | 6 (7.4) |
| Self-employed/other | 43 (39.5) | Renal | 5 (6.2) |
| Housewife | 2 (1.8) | Cutaneous | 5 (6.2) |
| Infective | 3 (3.7) | ||
| Marital status, n (%) | Pulmonary | 2 (2.5) | |
| Single | 60 (55) | Solid organ transplant after HSCT | 2 (2.5) |
| Married/Living with partner | 49 (45) | Secondary malignancy | 4 (4.9) |
| Living arrangements, n (%) | Children after HSCT, n (%) | ||
| Living alone | 15 (13.8) | Yes | 17 (15.6%) |
| Living with parents or other relatives | 45 (41.3) | No | 92 (84.4%) |
| Living with spouse/partner | 49 (44.9) | ||
| No. of total healthy births | 23 | ||
| Median age at survey (range) | 34 (21-48) | Median age at HSCT (range) | 12 (1-36) |
| Gender, n (%) | Pesaro class of risk at the time of HSCT, n (%) | ||
| Male | 65 (59.7) | 1 | 26 (23.9) |
| Female | 44 (40.3) | 2 | 45 (41.3) |
| 3 | 38 (34.5) | ||
| Schooling after transplantation, n (%) | |||
| Resumed | 28 (25.7) | Follow up, median years after HSCT (range) | 22.8 (11.7-30.3) |
| Completed | 58 (48.7) | ||
| Given up | 23 (25.6) | Acute GvHD (I-IV), n (%) | 39 (35.8) |
| Grade I-II | 35 (89.7) | ||
| Education level, n (%) | Grade III-IV | 4 (10.3) | |
| Compulsory school | 28 (25.7) | ||
| High school | 61 (56) | Chronic GvHD, n (%) | 20 (18.3) |
| University degree or higher | 20 (18.3) | Limited | 13 (65) |
| Extensive | 7 (35) | ||
| Employment status, n (%) | |||
| Unemployed | 19 (17.4) | Comorbidity, n (%) | |
| Employed | 84 (77.1) | Total | 81 (74.3) |
| Inactive* | 6 (5.5) | Metabolic or endocrine | 34 (42.0) |
| Hepatic | 32 (39.5) | ||
| Type of work, n (%) | Cardiac | 27 (33.3) | |
| Full-time employment | 30 (27.6) | Gastrointestinal | 6 (7.4) |
| Part-time employment | 9 (8.3) | Neurologic | 6 (7.4) |
| Self-employed/other | 43 (39.5) | Renal | 5 (6.2) |
| Housewife | 2 (1.8) | Cutaneous | 5 (6.2) |
| Infective | 3 (3.7) | ||
| Marital status, n (%) | Pulmonary | 2 (2.5) | |
| Single | 60 (55) | Solid organ transplant after HSCT | 2 (2.5) |
| Married/Living with partner | 49 (45) | Secondary malignancy | 4 (4.9) |
| Living arrangements, n (%) | Children after HSCT, n (%) | ||
| Living alone | 15 (13.8) | Yes | 17 (15.6%) |
| Living with parents or other relatives | 45 (41.3) | No | 92 (84.4%) |
| Living with spouse/partner | 49 (44.9) | ||
| No. of total healthy births | 23 | ||
Inactive is defined as unemployed and not looking for work.