Table 5. Representativeness of Community... | American Society of Hematology

Table 5.

Representativeness of Community Counts registry participants as a proportion of all patients treated at HTCs

Diagnosis	Severity	Midwest			Northeast			Southeast			West
Diagnosis	Severity	Registry CC patient count	HTC PP patient count	%	Registry CC patient count	HTC PP patient count	%	Registry CC patient count	HTC PP patient count	%	Registry CC patient count	HTC PP patient count	%
Hem A	Severe	6530	16138	40.5	4219	11453	36.8	7726	21793	35.5	3786	15202	24.9
	Moderate	1585	4709	33.7	1271	3970	32.0	2205	6250	35.3	1090	5361	20.3
	Mild	2492	9915	25.1	1722	7286	23.6	2245	9107	24.7	1405	9403	14.9
Total all Hem A		10607	30762	34.5	7212	22709	31.8	12176	37150	32.8	6281	29966	21.0
Hem B	Severe	1216	2944	41.3	735	2089	35.2	1236	3517	35.1	578	2815	20.5
	Moderate	1565	6453	24.3	503	2281	22.1	876	2853	30.7	442	2110	20.9
	Mild	798	4574	17.4	358	2105	17.0	765	3099	24.7	263	1939	13.6
Total all Hem B		3579	13971	25.6	1596	6475	24.6	2877	9469	30.4	1283	6864	18.7

Diagnosis	Severity	Midwest			Northeast			Southeast			West
Diagnosis	Severity	Registry CC patient count	HTC PP patient count	%	Registry CC patient count	HTC PP patient count	%	Registry CC patient count	HTC PP patient count	%	Registry CC patient count	HTC PP patient count	%
Hem A	Severe	6530	16138	40.5	4219	11453	36.8	7726	21793	35.5	3786	15202	24.9
	Moderate	1585	4709	33.7	1271	3970	32.0	2205	6250	35.3	1090	5361	20.3
	Mild	2492	9915	25.1	1722	7286	23.6	2245	9107	24.7	1405	9403	14.9
Total all Hem A		10607	30762	34.5	7212	22709	31.8	12176	37150	32.8	6281	29966	21.0
Hem B	Severe	1216	2944	41.3	735	2089	35.2	1236	3517	35.1	578	2815	20.5
	Moderate	1565	6453	24.3	503	2281	22.1	876	2853	30.7	442	2110	20.9
	Mild	798	4574	17.4	358	2105	17.0	765	3099	24.7	263	1939	13.6
Total all Hem B		3579	13971	25.6	1596	6475	24.6	2877	9469	30.4	1283	6864	18.7

The table displays all patients with hemophilia aged ≥2 years when enrolling into the CC surveillance system from 2013 to 2023

CC, Community Counts, a more detailed prospective registry; Hem, hemophilia; HTC/PP, population profile, all participants treated at the HTC.

Boldface numbers indicate cumulative counts and percentages for Hem A and Hem B participants, respectively, in each of the 4 regions.