HRQoL: results of select PROMIS-57 measurements and the Adult Sickle Cell Quality of LIfe Measurement System stiffness scale
| PROMIS-57 . | T-score, median (range) . | P value . | ||
|---|---|---|---|---|
| All . | No donor . | Donor . | ||
| Fatigue | ||||
| Baseline | 57 (33-78) | |||
| Number reporting | 94 | |||
| Change within participant | −4 (−28 to 20) | 0 (−22 to 20) | −13 (−28 to 1) | .003 |
| Number reporting | 47 | 37 | 10 | |
| Participation in social roles | ||||
| Baseline | 45 (26-65) | |||
| Number reporting | 93 | |||
| Change within participant | 3 (−25 to 22) | 2 (−25 to 21) | 15 (−4 to 22) | .003 |
| Number reporting | 46 | 36 | 10 | |
| Pain interference | ||||
| Baseline | 62 (40-77) | |||
| Number reporting | 94 | |||
| Change within participant | −3 (−26 to 22) | −1 (−26 to 22) | −12 (−21 to 16) | .071 |
| Number reporting | 47 | 37 | 10 | |
| PROMIS-57 . | T-score, median (range) . | P value . | ||
|---|---|---|---|---|
| All . | No donor . | Donor . | ||
| Fatigue | ||||
| Baseline | 57 (33-78) | |||
| Number reporting | 94 | |||
| Change within participant | −4 (−28 to 20) | 0 (−22 to 20) | −13 (−28 to 1) | .003 |
| Number reporting | 47 | 37 | 10 | |
| Participation in social roles | ||||
| Baseline | 45 (26-65) | |||
| Number reporting | 93 | |||
| Change within participant | 3 (−25 to 22) | 2 (−25 to 21) | 15 (−4 to 22) | .003 |
| Number reporting | 46 | 36 | 10 | |
| Pain interference | ||||
| Baseline | 62 (40-77) | |||
| Number reporting | 94 | |||
| Change within participant | −3 (−26 to 22) | −1 (−26 to 22) | −12 (−21 to 16) | .071 |
| Number reporting | 47 | 37 | 10 | |
The PROMIS-57 scale items are reported with the median, minimum, and maximum values. The summaries represent individuals who completed the baseline assessment and also the subset that completed the baseline and the 2-year assessments. Full results are shown in supplemental Table 3. Boldface indicates P values that achieved or approached statistical significance.