CHSCD implementation strategies and interventions tested
| Phase . | Strategy . | Intervention tested . | Time frame . |
|---|---|---|---|
| Preparation | Interviews with mothers regarding best way of conducting NBS; learning collaborative; protocol with manual of operations, French version; and informed consents, Haitian Creole | Working together as the CSHSCD network | 2016 2019 to present 2019 to 2020 2019 to present |
| Implementation | Reciprocal feedback between Miami and Haiti involving center investigators and study coordinators; backup for NBS laboratory; use of POC devices; encouraging active participation of study coordinators in discussions; availability of people who speak Haitian Creole in discussion; training and virtual monitoring of TCD ultrasound performance; data comparison; and barrier assessment | Diagnostic, NBS Diagnostic, Sickle SCAN Diagnostic, TCD ultrasound screening REDCap database Parent surveys Staff focus groups | Monthly ongoing 2020 to present 2020 to present 2020 to present 2018 to present 2021 to present 2019 to present 2019 to present 2022 |
| Sustainment | Discussion about how to achieve independence; meeting with Minister of Health designee; updates to Minister of Health seeking policy change for NBS and medication availability; and meetings with 2 pharmacy companies to bring oral penicillin and hydroxyurea to Haiti | Public health, policy Therapeutic, assuring a continuous supply of oral penicillin and hydroxyurea | 2022 to present 2018 2018, 2019, 2021, and 2022 2022 and 2023 |
| Phase . | Strategy . | Intervention tested . | Time frame . |
|---|---|---|---|
| Preparation | Interviews with mothers regarding best way of conducting NBS; learning collaborative; protocol with manual of operations, French version; and informed consents, Haitian Creole | Working together as the CSHSCD network | 2016 2019 to present 2019 to 2020 2019 to present |
| Implementation | Reciprocal feedback between Miami and Haiti involving center investigators and study coordinators; backup for NBS laboratory; use of POC devices; encouraging active participation of study coordinators in discussions; availability of people who speak Haitian Creole in discussion; training and virtual monitoring of TCD ultrasound performance; data comparison; and barrier assessment | Diagnostic, NBS Diagnostic, Sickle SCAN Diagnostic, TCD ultrasound screening REDCap database Parent surveys Staff focus groups | Monthly ongoing 2020 to present 2020 to present 2020 to present 2018 to present 2021 to present 2019 to present 2019 to present 2022 |
| Sustainment | Discussion about how to achieve independence; meeting with Minister of Health designee; updates to Minister of Health seeking policy change for NBS and medication availability; and meetings with 2 pharmacy companies to bring oral penicillin and hydroxyurea to Haiti | Public health, policy Therapeutic, assuring a continuous supply of oral penicillin and hydroxyurea | 2022 to present 2018 2018, 2019, 2021, and 2022 2022 and 2023 |