Table 1.

Sociodemographic and clinical characteristics of phase-4 participating patients with HL

HL
N = 381
n (%)
Country (language)  
Austria (German) 28 (7) 
China (Chinese) 35 (9) 
Croatia (Croatian) 20 (5) 
France (French) 16 (4) 
Germany (German) 5 (1) 
Greece (Greek) 3 (1) 
Italy (Italian) 17 (4) 
Jordan (Jordanian Arabic) 68 (18) 
Lithuania (Lithuanian) 14 (4) 
Netherlands (Dutch) 70 (18) 
Portugal (Portuguese) 56 (15) 
United Kingdom (English) 49 (13) 
Sociodemographic information  
Age (y): mean (SD), median, range 41.3 (16.8), 37, 18-89 
Sex  
Male 213 (56) 
Female 167 (44) 
Missing 1 (<1) 
Living arrangement  
Living with partner/family 320 (84) 
Living with others 8 (2) 
Living alone 42 (11) 
Missing 10 (3) 
Education  
No or primary school 23 (6) 
Secondary education 111 (29) 
Preuniversity training, university 230 (60) 
Missing 16 (4) 
Employment  
Employed 200 (52) 
Unemployed 67 (18) 
Retired, homemaker 90 (24) 
Training/education 17 (4) 
Missing 7 (2) 
Disease-related information  
Treatment received  
Systemic therapy (chemotherapy and/or immunotherapy) 366 (96) 
Radiotherapy 133 (35) 
Treatment line  
First 319 (84) 
Subsequent 29 (8) 
Missing 33 (9) 
On active treatment at time of baseline questionnaire  
Yes 165 (43) 
No 200 (52) 
Missing 16 (4) 
Time since start last active treatment  
On treatment to <3 mo 168 (44) 
3 mo to 1 y 65 (17) 
>1 y 128 (34) 
Missing 20 (5) 
Time since diagnosis, y: mean (SD), median 2.9 (4.8), 1 
<1 171 (45) 
1-3 83 (22) 
3-5 31 (8) 
>5 61 (16) 
Missing 35 (10) 
Stage of disease (Ann Arbor)  
32 (8) 
II 150 (39) 
III 65 (17) 
IV 112 (29) 
Missing 22 (6) 
Comorbidity  
No 236 (62) 
72 (19) 
≥2 64 (17) 
Missing 9 (2) 
Most common comorbidities  
Diabetes 23 (6) 
Thyroid disease 18 (5) 
Lung condition 12 (3) 
High blood pressure 28 (7) 
Heart condition 27 (7) 
ECOG  
230 (60) 
94 (25) 
15 (4) 
3 (<1) 
Missing 39 (10) 
HL
N = 381
n (%)
Country (language)  
Austria (German) 28 (7) 
China (Chinese) 35 (9) 
Croatia (Croatian) 20 (5) 
France (French) 16 (4) 
Germany (German) 5 (1) 
Greece (Greek) 3 (1) 
Italy (Italian) 17 (4) 
Jordan (Jordanian Arabic) 68 (18) 
Lithuania (Lithuanian) 14 (4) 
Netherlands (Dutch) 70 (18) 
Portugal (Portuguese) 56 (15) 
United Kingdom (English) 49 (13) 
Sociodemographic information  
Age (y): mean (SD), median, range 41.3 (16.8), 37, 18-89 
Sex  
Male 213 (56) 
Female 167 (44) 
Missing 1 (<1) 
Living arrangement  
Living with partner/family 320 (84) 
Living with others 8 (2) 
Living alone 42 (11) 
Missing 10 (3) 
Education  
No or primary school 23 (6) 
Secondary education 111 (29) 
Preuniversity training, university 230 (60) 
Missing 16 (4) 
Employment  
Employed 200 (52) 
Unemployed 67 (18) 
Retired, homemaker 90 (24) 
Training/education 17 (4) 
Missing 7 (2) 
Disease-related information  
Treatment received  
Systemic therapy (chemotherapy and/or immunotherapy) 366 (96) 
Radiotherapy 133 (35) 
Treatment line  
First 319 (84) 
Subsequent 29 (8) 
Missing 33 (9) 
On active treatment at time of baseline questionnaire  
Yes 165 (43) 
No 200 (52) 
Missing 16 (4) 
Time since start last active treatment  
On treatment to <3 mo 168 (44) 
3 mo to 1 y 65 (17) 
>1 y 128 (34) 
Missing 20 (5) 
Time since diagnosis, y: mean (SD), median 2.9 (4.8), 1 
<1 171 (45) 
1-3 83 (22) 
3-5 31 (8) 
>5 61 (16) 
Missing 35 (10) 
Stage of disease (Ann Arbor)  
32 (8) 
II 150 (39) 
III 65 (17) 
IV 112 (29) 
Missing 22 (6) 
Comorbidity  
No 236 (62) 
72 (19) 
≥2 64 (17) 
Missing 9 (2) 
Most common comorbidities  
Diabetes 23 (6) 
Thyroid disease 18 (5) 
Lung condition 12 (3) 
High blood pressure 28 (7) 
Heart condition 27 (7) 
ECOG  
230 (60) 
94 (25) 
15 (4) 
3 (<1) 
Missing 39 (10) 

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