Table 5.

PCR competencies and principles

A. Competencies
I. KnowledgeII. SkillsIII. Attitudes
Cultural context Communication Community values 
Knowledge about disease Conflict management Emotional intelligence 
Logistical considerations Critical thinking General attitudes toward PCR 
Participatory approaches Group participation Openness and trust 
Agenda setting Leadership Personal attributes 
Research methodology Project management Personal growth 
Understanding of data Teamwork Professional growth 
Understanding PCR Prioritization Self-reflection 
B. Principles 
I. Shared learning experience Involvement of patients, caregivers, and other stakeholders in all aspects of the research 
Researchers and team members learning about PCR methodology 
Training for patients, caregivers, and other stakeholders on research principles 
II. Collaborations Cultural sensitivity and mutual respect 
Fair compensation for effort and time 
Inclusion and diversity for all project-related activities and partnerships 
Planning ahead for meetings, tasks, and milestones with realistic time lines 
III. Bidirectional relationships Patient, caregivers, and other stakeholders are involved as research partners 
Well-defined roles and strategies informed by collaborative discussions 
IV. Trustworthiness Clear and transparent communications 
Shared decision-making process 
Sharing information and data openly 
A. Competencies
I. KnowledgeII. SkillsIII. Attitudes
Cultural context Communication Community values 
Knowledge about disease Conflict management Emotional intelligence 
Logistical considerations Critical thinking General attitudes toward PCR 
Participatory approaches Group participation Openness and trust 
Agenda setting Leadership Personal attributes 
Research methodology Project management Personal growth 
Understanding of data Teamwork Professional growth 
Understanding PCR Prioritization Self-reflection 
B. Principles 
I. Shared learning experience Involvement of patients, caregivers, and other stakeholders in all aspects of the research 
Researchers and team members learning about PCR methodology 
Training for patients, caregivers, and other stakeholders on research principles 
II. Collaborations Cultural sensitivity and mutual respect 
Fair compensation for effort and time 
Inclusion and diversity for all project-related activities and partnerships 
Planning ahead for meetings, tasks, and milestones with realistic time lines 
III. Bidirectional relationships Patient, caregivers, and other stakeholders are involved as research partners 
Well-defined roles and strategies informed by collaborative discussions 
IV. Trustworthiness Clear and transparent communications 
Shared decision-making process 
Sharing information and data openly 

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